The Behavioural Research Ethics Board (BREB) has been working since 2023 on integrating actions from the UBC Indigenous Strategic Plan (ISP) into its operations and review practices. As part of our response, we are pleased to share this Indigenous Ethics Application Pilot project with researchers, students and staff at UBC. The pilot project, and what we learn from it, is part of a larger conversation at UBC about moving research forward by supporting research initiatives that are reciprocal, community-led, that legitimize Indigenous ways of knowing, and promote Indigenous peoples’ self-determination (Goal 3 of the UBC ISP).
We welcome your feedback on the process and pilot documents at any time, but we will not be making changes to the materials while the pilot is in progress.
If you are interested in participating as a researcher in the Indigenous Ethics Application Pilot Project, please find more information below, or reach out to wendy.bond@ubc.ca if you have any questions.
About the Pilot project
Many contributors have shared their knowledge and ideas towards our conception of an alternative research ethics application. These include the ISP Working Group members as well as Indigenous faculty and graduate students. We also appreciate the generous sharing by the First Nations Health Authority (FNHA) of their 7 Directives, as a starting point for development. We also drew upon other sources, including Royal Roads University’s Indigenous Research Ethics Process, Chapter 9 of the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans (TCPS2), and the First Nations Principles of Ownership, Control, Access and Possession (OCAP®).
Indigenous research can take many forms and may involve an Indigenous community, territory, organization, or a community of interest to a lesser or greater degree, depending on the entity’s preferences and capacity to be involved. Research may also be carried out by members within the community. These different forms of research necessarily involve relationships between those carrying out research, those who are contributing to research, and those who will be affected by the researcher.
A key difference between the regular applications hosted in RISe and the pilot application is the emphasis we have given to relationships. Ethical Indigenous research is founded on building these relationships and in this application you will have space to describe the building all of these relationships. For example, if you are conducting research within your own community, you will have space in the ethics application to provide this context.
The difference in approach is also reflected in the 5 guiding principles (see below) drafted by the Working Group and which have provided a framework for determining what questions to include in the pilot application.
The pilot takes into account the broad range of behavioural Indigenous-focussed research ethics applications submitted to the BREB. These include:
- Studies conducted on behalf of First Nations and Indigenous peoples and communities in BC, Canada and internationally
- Research that originates outside a specific Indigenous population but whose findings may directly impact Indigenous populations, and
- Research conducted by both Indigenous and non-Indigenous researchers (students and faculty)
Before finalizing our recommendations for implementing an alternative ethics application for Indigenous-focussed research, we will be asking pilot participants to share their experiences. We are keen to receive feedback on each pilot component, including engagement with the BREB, the guiding principles, the application questions (including explanations and sample responses), and review comments received from the BREB team.
How to get started on submitting your application
In order to ensure that your application will be suitable for the pilot and ready for review, we request that you complete the pre-submission form. Submitting the pre-submission form does not oblige you to participate in the pilot and you may change your mind at any point. If you have any questions while filling in the pre-submission form, feel free to contact wendy.bond@ubc.ca.
If you determine that your research is not suitable, please log into https://www.rise.ubc.ca/ and complete your behavioural ethics application there. If you need assistance, Maria Valente (BREB Manager) can be contacted by email: maria.valente@ubc.ca.
Guiding Principles
Principle 1 | Researchers respect Indigenous communities, collectives and organizations (ICCOs) in their decision making and control of the research
Rationale: Research needs to reflect the needs and goals of the ICCOs rather than the assumptions of researchers alone. The BREB asks that researchers confirm in their ethics application that they have either co-developed or discussed the research goals and design with the applicable ICCO before submitting their ethics application.
Principle 2 | Research relevance and priorities support the interests of Indigenous communities, collectives and organizations
Rationale: The BREB will be looking for information, where appropriate, about how the researchers have engaged with an ICCO on its research goals/priorities and its protocols. Where engagement is not appropriate or possible, an explanation of the research relevance is requested.
Principle 3 | Research provides benefits to Indigenous peoples, communities, lands and waters
Rationale: The BREB will be looking for how the community will share in the benefits of research. This should include tangible evidence of what benefits will be delivered, both in the short-term and long-term (e.g., what ongoing commitments have been made by the researchers to the community and participants).
Principle 4 | Researchers demonstrate self-awareness and awareness of culturally safe practices
Rationale: The BREB will be looking for a demonstration of how researchers will ensure culturally safe practices for participants and communities with whom they are engaging. General statements about following OCAP® principles, as an example, are not sufficient, unless the procedures described in the ethics application also demonstrate how the principles will be put into action.
Principle 5 | Researchers contribute to meaningful and accountable relationships with Indigenous partners, including Indigenous communities, collectives and organizations (ICCOs), and research participants
Rationale: The BREB is looking for a description of specific actions undertaken by the research team that reflect the principle of reciprocity. Researchers should also acknowledge the benefits they may receive as a result of engaging with their community partners/participants.
Terms used in the Pilot Ethics Application
Community-based research
To be considered community-based (or community-involved) research in the BREB context, there should be a significant element of involvement from the community (however defined) in developing the goals, design and methods of the research project. Not all research partners may want to be hands on with administration of the research project, so evidence of how a project is community based may include differing levels of oversight and/or contribution. It may be easier to demonstrate that a research project is community based if the aims originated from a First Nation or Indigenous community initiative. Equally valid forms of community engagement might include:
- Submitting the research proposal to an Indigenous research review board for its consideration and approval
- Involving Indigenous partners in a funding application or supporting a funding application that originates in the community
- Collaborating with an agency or consulting firm that provides services to the community
ICCOsICCOs (Indigenous communities, collectives and organizations)
The phrase "Indigenous community, collective or organization" (shortened to ICCO) is used throughout the application to indicate that the ethics applications reviewed by the BREB include multiple Indigenous groups (First Nations, Metis, and Inuit) as well as Indigenous entities within and outside Canada. The term ICCO has been adopted with permission from BCNEIHR. Please see their article https://mdpi.com/1660-4601/20/15/6523 for background.
Also see the TCPS2 definition of "Community" (https://ethics.gc.ca/eng/tcps2-eptc2_2022_chapter9-chapitre9.html#a) for further discussion:
- An “Indigenous community” could represent the governing body of a First Nation, Metis or Inuit community.
- A “collective” might be a special topic support group or group of Elders brought together for the purpose of advising the researcher.
- An “organization” might be the management team and/or membership of a Native Friendship Centre, an Indigenous consulting firm, health care service agency, or an advisory committee drawn from the local population.
Please note that these examples are not intended to be exhaustive, but rather to provide guidance around the use of the term ICCO for the pilot.
Indigenous-focussed research
The BREB aligns with the definition provided by the Social Sciences and Humanities Research Council (SSHRC) via its Indigenous Advisory Circle:
“Research in any field or discipline that is conducted by, grounded in or engaged with First Nations, Inuit, Métis or other Indigenous nations, communities, societies or individuals, and their wisdom, cultures, experiences or knowledge systems, as expressed in their dynamic forms, past and present. Indigenous research can embrace the intellectual, physical, emotional and/or spiritual dimensions of knowledge in creative and interconnected relationships with people, places and the natural environment.
“Whatever the methodologies or perspectives that apply in a given context, researchers who conduct Indigenous research, whether they are Indigenous or non-Indigenous themselves, commit to respectful relationships with all Indigenous peoples and communities.”
Research where the groups from which participants will be drawn are likely to include a significant proportion of Indigenous persons should consider the principles of Indigenous research when designing their research project and before submitting to the BREB.
ProtocolsProtocols (or Norms)
These refer to the specific guidelines, practices, and customs that govern interactions and behaviours within a particular context. They encompass how people communicate, show respect, and engage with one another, particularly when different cultures intersect. Indigenous protocols vary depending on the community, so researchers are encouraged to discuss with the Nation or group they will be working with and adhere to their advice and guidance.
Protocols may include:
Communication Styles: Understanding whether direct or indirect communication is preferred and the appropriate use of language, terminology, and non-verbal cues.
Respecting and honouring cultural rituals, ceremonies and significant events that are important to a community.
- Being aware of how decisions are made within different cultures, whether they involve collective or individual approaches, or are crucial for fostering understanding and respect.
- Gift-Giving: Understanding the significance of giving and receiving gifts, including what is considered appropriate or not.
Understanding and adhering to protocols is not just a matter of respect, but also helps avoid misunderstandings and potential conflicts. Becoming informed will help to ensure respectful and meaningful interactions and will help to build cooperation among individuals from diverse backgrounds.
Indigenous Faculty and Graduate Student Feedback
- Value of face-to-face meetings: BREB with research team / with community partners
- Over-emphasis on legalistic requirements at the expense of recognition for Indigenous values (relationship, respect, accountability)
- REB review should be a conversation between researcher and reviewer, but often comes across as punitive, judgmental
- Lack of clarity in the ethics application about what information is being sought
- Perception of an underlying message that there is “one right way” to conduct research
- Agreement that the research ethics review process adds value to the quality of research
- Verification process is lacking for researcher accountability to community partners
Working Group members
Want to contact us?
To discuss your research project or learn more about the pilot, please contact Wendy Bond in the Office of Research Ethics (wendy.bond@ubc.ca).